This has been a long week, but one with a fast pace. If that makes any sense. I haven't been able to get my act together to sit down and write here. I've also been absolutely exhausted. I managed to make dinner and clean up Tuesday night, but then I was just sitting in the kitchen with my head resting on the counter. Finally, I gave up and was nice and cozy in bed at 7:30, thinking I could read for awhile. That didn't last long. I was asleep at 8:00.
My dad come home last week (I think.) Or maybe it was the week before. The days seem to bleed together lately. He's going through an okay period right now and we know it won't last forever, but we're trying to stay positive. I've been going over to my parents' a couple mornings a week to help out or sit with my dad when my mom has her own appointments. One morning, I ran into the grocery store to pick up a couple of forgotten items and there was an elderly gentleman in front of me as I entered the produce section. I suddenly felt this sad anger over the life my dad is being denied. He'll never be able to walk into a store again. (I have such a soft spot for the elderly so my feelings were in no way directed towards a stranger. He was simply a trigger.)
Anna had another doctor's appointment at Children's Hospital in Boston on Tuesday and while I have no complaints with respect to the care she received at Mass General, if you have a child with spina bifida, Children's is the place to be. There are so many specialists there who work with these kids. It's a shame that years ago we were hooked up with a GI specialist at Children's who had zero SB experience because that was a complete turnoff and made me not want to move over there. We are now with doctors who work with a ton of SB kids and they've been great. Anna's neurosurgeon (shunt stuff) is still with MGH and we have no current plans to change that.
My one HUGE complaint is the traffic which no one can do anything about. It's like complaining about the weather. It took us an hour and 45 minutes to drive to Children's . We live 30 miles away and most of that is highway or major roads. And yes, we use Waze but there's only so much an app can do. We had to drop Allie and Emily off at school before we could leave and the school doesn't open to students until 7:00. We were there early and a teacher let them in at 6:58. Ideally, it would have been better if we had left at 6:30 but that would have required finding someone to bring A and E to school. Really, we've reached the point in Boston where you need to give yourself 2+ hours to travel 30 miles during rush "hour" which begins at 6:00 am, if not before. So, yeah, there's that.
I need to go through my fall photos and see what I've already posted. Also known as getting my act together. I hope to be back before another week goes by. . . .
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