tag:blogger.com,1999:blog-7707332630639933436.post8124475145534179219..comments2024-02-21T07:58:44.752-05:00Comments on The Great Umbrella Heist: Yeah, well, maybe it's your breath that smells like garbage.Sarahhttp://www.blogger.com/profile/09856102708963900512noreply@blogger.comBlogger16125tag:blogger.com,1999:blog-7707332630639933436.post-17418010468522126532015-01-24T16:58:30.912-05:002015-01-24T16:58:30.912-05:00Oh my heart. I know things like diapers comments a...Oh my heart. I know things like diapers comments are in our future, but I dread it. Claire's only almost-three, but she wants to wear undies like her sister, and it's just another thing where SB is rearing its head in a way it doesn't usually. I'm glad you post these updates. As always, having SB parents a few years down the road is helpful and comforting.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7707332630639933436.post-14309464256697689082015-01-24T14:38:02.897-05:002015-01-24T14:38:02.897-05:00My daughter does not have spina bifida but, do to ...My daughter does not have spina bifida but, do to a traumatic birth, faced almost the same learning problems Anna is starting to have. It was hard,and we even ended up holding her back in 5th grade because coping with all the changes was just overwhelming to her. I'm happy to say that, with the help of the child study team, she went on to become a top student in high school and is now a special ed teacher. All my tears and sleepless nights were worth it. She struggled but succeded and we are all better people for it.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7707332630639933436.post-75249784666262471192015-01-23T22:52:18.876-05:002015-01-23T22:52:18.876-05:00It DOES break your heart! I'm so sorry that h...It DOES break your heart! I'm so sorry that happened to Anna. My daughter has Apraxia and doesn't speak like other children. She's pretty, smart, and driven, but some people don't see past her speech. A few weeks ago, a girl on her cheer team got in her face and yelled, "SAY R!" over and over. I told my daughter to tell her, "Bite me, is that clear enough?", but she is a much better person than me. She told me it's better to be nice. I'm glad she doesn't take after her mom. :) Lesliehttps://www.blogger.com/profile/02543646856409413038noreply@blogger.comtag:blogger.com,1999:blog-7707332630639933436.post-56421509116723551512015-01-23T21:51:15.607-05:002015-01-23T21:51:15.607-05:00So sorry Anna had to deal with the horrible commen...So sorry Anna had to deal with the horrible comment made by her classmate. It really upsets me to read this entry on many levels. Love you Anna! GrammyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7707332630639933436.post-5894030780591727582015-01-23T13:50:34.980-05:002015-01-23T13:50:34.980-05:00Curious - does she wear regular diaper/depend type...Curious - does she wear regular diaper/depend types?<br />Have you tried the GoodNite Tru Fits, Super Undies, etc?<br />If I saw the GoodNites, I wouldn't know the difference - but maybe those won't work for her, I'm not sure what her exact needs are!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7707332630639933436.post-86560207248652287932015-01-23T12:14:04.582-05:002015-01-23T12:14:04.582-05:00Thank you all for your positive comments.
Laure...Thank you all for your positive comments. <br /><br />Lauren - I always tear up when you leave a comment. Your sister sounds amazing and is so lucky to have such a great family and great friends.<br /><br />As for homeschooling - No. I'm not a teacher. The schools in Mass. are the highest rated in the country and I would not want to deny her that education and support. Her teachers have been amazing thus far. <br /><br />Anon with the son with SB - it is hard. Some of her friends know that she has SB and they don't care b/c it doesn't matter. Sarahhttps://www.blogger.com/profile/09856102708963900512noreply@blogger.comtag:blogger.com,1999:blog-7707332630639933436.post-47344803382187667262015-01-23T11:33:23.317-05:002015-01-23T11:33:23.317-05:00Have you ever considered homeschooling Anna? Have you ever considered homeschooling Anna? ChloeElysehttps://www.blogger.com/profile/02016087939266765751noreply@blogger.comtag:blogger.com,1999:blog-7707332630639933436.post-73934037527473528922015-01-23T11:21:46.083-05:002015-01-23T11:21:46.083-05:00It's great that Anna has sister's around w...It's great that Anna has sister's around who have her back. It probably feels less isolating knowing Allie and Emily support her and are willing to stick up for her- she always has at least two people on her side. <br /><br />Also, kids are the worst. I know they act horribly because they haven't finished developing their social skills/maturity level but that girl was just malicious. She probably has her own issues she's working out and decided to pick on Anna to make herself feel better. Ugh. Katienoreply@blogger.comtag:blogger.com,1999:blog-7707332630639933436.post-42340371541061731712015-01-23T10:58:45.188-05:002015-01-23T10:58:45.188-05:00I ache for you and your daughters, I understand th...I ache for you and your daughters, I understand the situation that you are in. I think I've commented on here before about this but my little sister was diagnosed with autism just a few months before her 5th birthday. While autism and hydrocephalus are not the same thing, there are definitely similarities. My sister Erica has brain inflammation as well as permenant brain damage, she is 16 and in highschool now, but every year she got older it became more and more apparent how far behind she was from the 'typical' kids. It was so hard and still is so hard to accept the fact that she will most likely be at a 7 year old level for the rest of her life and will never catch up to her peers, however, it is what it is and I think my family in coming to peace with it. Erica has an amazing support group at school, both with her peers and the 'typical' peers! She got asked to her first sleepover last year, got asked out to homecoming this year! She goes to the movies and hangs out at the mall with her friends, I think she has more of a social life than I did in highschool! I pray that Anna continues to fly past any limit that is put on her, while I've never met her I can tell how special and strong she is, as well as her sisters. There may be hard roads ahead but I promise it is all worth it in the end, no matter the outcome<br />Love,<br />LaurenLauren Mhttps://www.blogger.com/profile/11137742523544244909noreply@blogger.comtag:blogger.com,1999:blog-7707332630639933436.post-51066118586216881352015-01-23T10:55:32.882-05:002015-01-23T10:55:32.882-05:00My son has spina bifida as well and is in diapers....My son has spina bifida as well and is in diapers. He is in first grade. As far as I know the diaper issue has not come up at school. I have often wondered if it is best to educate the other kids on why he has to be in diapers. Some of our neighborhood kids know and we have just been honest and explained. They have never even given it a second thought. I don't want him to be ashamed of being in them. It is so hard to know what the right way to handle it is!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7707332630639933436.post-52733502655898374372015-01-23T09:13:09.412-05:002015-01-23T09:13:09.412-05:00Her sister have her back. What a blessing!Her sister have her back. What a blessing!JENhttps://www.blogger.com/profile/18357044911025475893noreply@blogger.comtag:blogger.com,1999:blog-7707332630639933436.post-25323342399021791452015-01-23T09:02:01.170-05:002015-01-23T09:02:01.170-05:00Girls can be so evil at times. And the sad thing i...Girls can be so evil at times. And the sad thing is, it gets worse. I would be reacting just like you.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7707332630639933436.post-72395761353217162232015-01-23T00:25:35.411-05:002015-01-23T00:25:35.411-05:00I know you're doing the right thing by being c...I know you're doing the right thing by being calm and setting a good example for Anna by rising above it, but my first reaction is to call that little girl evil and horrible and other not so nice words. :) Some children just don't get it, what kind of pain they can cause. I'm sure your girls are scores ahead of other kids on the empathy front, not only because of your obviously wonderful and thoughtful parenting, but because of their unique bonds with each other. <br /><br />Go you! Go Anna! Carolinenoreply@blogger.comtag:blogger.com,1999:blog-7707332630639933436.post-51555484793658642042015-01-23T00:03:29.149-05:002015-01-23T00:03:29.149-05:00You do a great job mama. I love reading your blog ...You do a great job mama. I love reading your blog and you are right-the issues will be bigger come 7th and 8th grade.lesleyhttps://www.blogger.com/profile/09501503992952033631noreply@blogger.comtag:blogger.com,1999:blog-7707332630639933436.post-40730326068186733502015-01-22T23:39:20.151-05:002015-01-22T23:39:20.151-05:00Poor Anna. Comments like that must be so hard for ...Poor Anna. Comments like that must be so hard for her - and her sisters - to hear. She is so lucky to have such strong support in her family and especially her sisters. I have learned so much about spina bifida from your blog and it's amazing how it really does impact all areas of Anna's life. She, and your other girls, are going to be such strong and accepting women. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7707332630639933436.post-15034465326730614852015-01-22T22:43:30.798-05:002015-01-22T22:43:30.798-05:00It does get harder, much harder. I have children i...It does get harder, much harder. I have children in grades 9, 7, 5, and 4. I am busy everyday from 3pm (when I get home from work) till 10pm+, when at least two are still up doing homework. The hardest thing is organizing everyone, making sure the homework is done and done well, the papers are signed, the money paid, the sport driven to and back, the injury attended to, the laundry ready for the next day, the project supplies purchased, etc. The stakes are much higher now. You're doing a great job! I'm from MA as well. The academic pressure on the children in this high-stakes state is real and parenting has become a competitive sport. Anonymousnoreply@blogger.com